The campaign to try to get the drug Orkambi provided to cystic fibrosis patients continued this week. On Tuesday supportive MPs met in Parliament with the Cystic Fibrosis Trust to discuss the latest developments and later that day the Health Secretary Matt Hancock was quizzed by MPs on the Health Select Committee.

On Thursday morning I met with the Nuffield Trust to hear about their programme to get patients with cystic fibrosis exercising more, linking up their health and wellbeing centres with local hospitals, and I then joined campaigners in Parliament Square calling on the Government and the drugs company Vertex to come to a resolution. Negotiations have been going on for far too long now, with little sign of any progress – and this means patients are going untreated and, in some cases, tragically dying as a result.

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