Kerry McCarthy Labour MP for Bristol East
Last week in the Commons I raised the case of Jake Ogborne and access to Spinraza with Jacob Rees-Mogg, the Leader of the House. One of my constituents Jake Ogborne, who is just 18, has Spinal Muscular Atrophy (SMA). Spinraza is an innovative new drug which has been proven to help people with SMA manage their condition and prevent them from getting worse. It was recently approved for use by NICE for SMA patients, but with – I believe – unfair eligibility criteria, which excludes Jake. Before his appointment to Government both Jacob Rees-Mogg and I raised this issue with the previous Prime Minister. He has now promised me that he will write to the Health Secretary, and I hope that will help us get a review of Jake’s case.
Posted by Kerry McCarthy on Tuesday, October 1, 2019
Last week in the Commons I raised the case of Jake Ogborne and access to Spinraza with Jacob Rees-Mogg, the Leader of the House. One of my constituents Jake Ogborne, who is just 18, has Spinal Muscular Atrophy (SMA).
Spinraza is an innovative new drug which has been proven to help people with SMA manage their condition and prevent them from getting worse. It was recently approved for use by NICE for SMA patients, but with – I believe – unfair eligibility criteria, which excludes Jake.
Before his appointment to Government both Jacob Rees-Mogg and I raised this issue with the previous Prime Minister. He has now promised me that he will write to the Health Secretary, and I hope that will help us get a review of Jake’s case.
