Kerry McCarthy Labour MP for Bristol East
I recently posted about BBC News coverage of my constituent Jake Ogborne, a young man suffering from Spinal Muscular Atrophy (SMA) who desperately needs a treatment called Spinraza.
Sadly, arbitrary access criteria mean that Jake can’t access Spinraza (which is a potentially life-changing treatment) on the NHS – so his family has started a petition calling for it to be funded for all SMA patients. If it gets 100,000 signatures, there’s a chance Jake’s case will be debated in Parliament – so if you agree that people like Jake deserve Spinraza, you can show your support here: https://petition.parliament.uk/petitions/552816.
Read my post about our continuing fight to get Jake access this life-changing drug here.